Hawarden resident Phoebe Bruce suffers from Ehlers Danlos Syndrome

Nobody in the Chester and North Wales area could fail to sympathise with the plight of Phoebe Bruce, a delightful 17 year old Hawarden resident who has been suffering dislocations virtually every day of her young life due to a crippling genetic condition. Ehlers Danlos Syndrome, as it is known, is exceptionally rare and prevents the body from producing collagen, a necessary component of cartilage needed to keep joints in place. She has even been known to suffer 18 dislocations in one day.

Phoebe has recently appeared on the television and other media in her campaign to secure funding for specialist treatment and adaptations she so desperately needs. Those living in the area and friends and family had organised many fundraising activities including a band night at Mancot village hall which was due to be held on Saturday the 20th of October.

Unfortunately the fund raising event was on the point of being cancelled when the original band band fell ill. With 110 tickets sold and hundreds of pounds raised for a raffle, disaster was narrowly averted when Mark Lampkin, owner of Lampkin & Co Solicitors who had bought tickets found out. “I know Phoebe personally as her father is a client and a friend and so I really wanted to help. We all love Phoebe and want to do all we can as she is constantly in pain.” he said.


In Colour with Mark Lampkin on sax

Fortunately he also plays in a band as does his web designer Paul Sandford. So last minute plans were made and Paul’s band “In Colour” appeared with Mark Lampkin guesting on Sax.

Lampkin & Co also sponsor Jade Sullivan from Buckley who is trying to make it as a singer having won the “Dee’s Got Talent” show on Chester’s Dee 106.3 radio and she instantly agreed to appear, thrilling the crowd with her amazing voice.

Event organiser Jo Ellis-Murray was ecstatic “What a great night. People were so generous and we raised in excess of £1300 which will go a long way to helping Phoebe. I can’t thank Lampkins enough for sponsoring the event, we couldn’t have done it without them. It’s great to see a local firm supporting the community.”

Phoebe and her family and friends are continuing their efforts and can be contacted through the facebook page “Funds for Phoebe”.